THE INSIGHT:
Patients said it. They wanted to know if they were progressing.
”Don’t sugar-coat it ‘doc. And don’t expect me to take it sitting down.”
THE EDUCATION:
Build the tools. Put them in the patients’ hands.
There’s no test for this. It’s just them and their doctor.
Start paying attention to everything and catch this at the earliest signs of change.
EDUCATE THE EDUCATED
MS patients have been avoiding relapses for 10+ years. Now they have to avoid, avoiding relapses?
Our patients were long-term MS warriors. They know their disease better than anyone. But this. This is new.
Once we could get them to swallow this piece of information, the charge to stay ahead of change would fall into place.